This Brutiful Life

My husband and I have been taking full advantage of our PTO over the holidays by focusing on resting and recharging. Here is how we have been spending the majority of our free time: 1) Taking time away from medical stuff — We needed a break from having to make medical decisions, so we have… Read more

As I stated in my Pivot post, we are in the process of gathering information about possible next steps on this health journey. There are a lot of decisions that need to be made, and I am feeling quite a bit of decision fatigue. As a result, I continue to focus on simply doing the… Read more

I have frequently been told over the years by people who know me well that I am one of the most real and authentic people they know. They tell me that what I present on the outside is exactly who I am on the inside. They trust me because of my realness, and they value… Read more

Background: I have a full-time wage-producing job, and I am also the manager of my health journey (another full-time job that is definitely not wage-producing). There are a lot of moving parts in my life: working, talking to doctors, appointments, dealing with insurance, coordinating procedures, labs, treatment protocols, etc. Even with a very supportive and… Read more

Every time I say the word “pivot” out loud, I think of the video clip below from the TV show Friends and giggle to myself: Here is the latest update . . . Physical Health:I am happy to report that I was able to get the first of two IV iron infusions this week. The… Read more

When life is “life-ing”, and everything seems confusing and weird, I try to remind myself of the saying by Glennon Doyle that I have hanging in my home office: Here is the latest update . . . Physical Health:I am currently in the process of slowly increasing the dosage of the 2nd prescription medication I… Read more