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This Feels Right
Physical Health:I officially ended my patient-practitioner relationship with my former main medical practitioner about 6 weeks ago. Since my husband and I had been anticipating this change for a few months prior, we had begun seeking out new medical practitioners to determine if they were a good fit for my situation. Having been on this… Read more
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Choices
One of the hardest parts of living alongside an invisible complex chronic illness is the number of decisions that I need to make every second of every day without a road map. I live alongside a level of uncertainty that would take most people out. Robert Groysman, MD, recently asked his online community to describe… Read more
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Courage
Physical Health:I am continuing to try to figure out my next steps on this health journey. I officially ended my patient-practitioner relationship with my former main medical practitioner. I didn’t want to stop working with her, because she cared more than any other medical practitioner I have had in the last 8 years. However, I… Read more
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Am I On Candid Camera?
My life is absurd on even the best of days. I often pause and wonder if I am on Candid Camera. Most people would not be able to live alongside the amount of bullshit I deal with on a regular basis. In fact, the people in my inner circle are continually shocked by the details… Read more
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What Day Is It?
Physical Health:I am continuing to try to figure out my next steps on this health journey. I had a 40-minute initial consultation with a new doctor two weeks ago to determine if he is a good fit for my situation. Prior to the initial consultation, I uploaded the items this doctor requested from me: my… Read more
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RiGhT oN ScHeDuLe
Physical Health:There is not much new here to report. I did start wearing a smart watch to track some health data. To absolutely no one’s surprise — and right on schedule 🤣 — I developed a rash on my skin underneath the watch. It is a little difficult to see in this image, but this… Read more

