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Patterns
One of my superpowers is seeing patterns. I am a highly sensitive, introverted, empath. I sense what is going on around me in ways that others don’t. I watch the way people behave (including myself), and I can very accurately predict what is going to happen next. It is one of the reasons I was… Read more
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A Little Humor (1/21/2023)
Background: As I have mentioned, the last 2 weeks have been unbelievably busy for both me and my husband. We have literally been trying to take 1 minute at a time as we have been searching for next options on this health journey. As previously discussed, we are working full-time, attending appointments, making calls, and… Read more
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Backstory #2
[Note: This post may be updated in the future if more information is available.] I started having new symptoms when I was around 14-years-old. At this age, I developed a skin rash on my scalp that was diagnosed as “just dandruff” by doctors for many years. I also began having more sinus infections, heavy menstrual… Read more
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Next 3 Weeks
The next 3 weeks (depending on my menstrual cycle and when the tests arrive at my home) will consist of completing 4 at-home tests (saliva, hair, urine (x2)) and 1 laboratory test (blood). The instructions for the tests are very confusing and require quite a bit of attention to detail. Luckily, attention to detail is… Read more
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Backstory #1
[Note: This post may be updated in the future if more information is available.] How did we get here? I don’t know if we will ever know for sure. And, what we know right now might change tomorrow. The number of doctors who have told me that my case is complicated is high. (In fact,… Read more
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How Much is Your Life Worth?
How much would you spend to try to save your life? This is a frequent topic of conversation in our house. My husband is the sweetest and has always made it clear that my life is worth every penny we have to spend to try to save it. However, that doesn’t take away the burden… Read more
