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American Symphony
My husband and I watched the Netflix documentary American Symphony a few weeks ago. The documentary is about Jon Batiste and his wife, Suleika Jaouad. Jon Batiste was the bandleader for The Late Show with Stephen Colbert from 2015-2022. Here is the trailer: And, then we listened to Dax Shepard’s Armchair Expert podcast episode with Jon Batiste (episode… Read more
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Finances & Finale (2023)
The grand total for how much my husband and I spent out-of-pocket on my health situation in 2023 is $82,774.35. The breakdown is as follows: $47,286.55 on medical practitioners, testing, medications, treatments, and therapy, and $35,487.80 on home mold testing, remediation, air quality supports, etc. In a blog post published in early January 2023, I… Read more
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My Life or Alien Abduction?
I saw the image above this week, and it made me stop and actually ponder it. The fact that I was even pondering it made me laugh. I mean, I actually questioned whether or not living my life as it is or being abducted by aliens would be easier at this point. At least I had a good… Read more
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Holiday PTO (2023)
My husband and I have 2 weeks off around the holidays to slow down a bit. By slowing down, I mean that we actually have time to do some of the other items for my health situation without having to work it all around our paying jobs. We are so grateful for this time off together. Simply taking… Read more
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Cocooning
I have been cocooning for the last week. When the world outside feels harsher than usual, I try to combat the harshness by doubling down on self-compassion, getting cozy in my comfy clothes, and cocooning. I spend some time retreating into myself and into the safety of my husband when it feels like life is coming… Read more
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Comparative Suffering
“I didn’t share _____ with you, because I didn’t want to burden you with my problems. You have it so much worse than me.” I have had friends say this to me many, many times over the last few years. In fact, I have had two friends say this to me on two separate occasions… Read more

