• Onward

    [Disclaimer: I am not a doctor, and this post is not medical advice. I am writing about what I know so far about my own health journey and am always updating my knowledge base along the way. If you have questions about your own life, contact a medical professional.] I ended my previous post by… Read more

  • Finding the Fun

    I received this text message from a dear friend of mine right before the holidays: The message stopped me in my tracks for a couple of reasons. First, it was kind and supportive and loving. She is one of the people I can truly count on for love and support. Second, it reminded me that… Read more

  • Holiday PTO (2024)

    My husband and I have been taking full advantage of our PTO over the holidays by focusing on resting and recharging. Here is how we have been spending the majority of our free time: 1) Taking time away from medical stuff — We needed a break from having to make medical decisions, so we have… Read more

  • Decision Fatigue

    As I stated in my Pivot post, we are in the process of gathering information about possible next steps on this health journey. There are a lot of decisions that need to be made, and I am feeling quite a bit of decision fatigue. As a result, I continue to focus on simply doing the… Read more

  • Authenticity Crisis

    I have frequently been told over the years by people who know me well that I am one of the most real and authentic people they know. They tell me that what I present on the outside is exactly who I am on the inside. They trust me because of my realness, and they value… Read more

  • A Little Humor (12/3/2024)

    Background: I have a full-time wage-producing job, and I am also the manager of my health journey (another full-time job that is definitely not wage-producing). There are a lot of moving parts in my life: working, talking to doctors, appointments, dealing with insurance, coordinating procedures, labs, treatment protocols, etc. Even with a very supportive and… Read more