Physical Health:
Last Thursday night into Friday morning, I began having a physical reaction to something. My face started developing a familiar rash.
By Saturday afternoon, I was experiencing a terrible headache and extreme fatigue, and I was dizzy and nauseated. I slept most of Saturday afternoon and evening.
While this is one of my body’s common reactions, the issue at hand is that we don’t know if this was an MCAS flare, or a detox reaction (from the toxins in my body), or a reaction to a medication or supplement. According to my main doctor, some patients who get a SGB (see my Onward post for more info about SGBs) have an MCAS flare afterwards, and then have felt better when the flare subsides. However, since we don’t know for sure, it makes the next steps difficult to determine. I was supposed to have my 2nd SGB today, but we have postponed it until Friday to see if my body can recover in time for the 2nd procedure. We are trying to find the right balance of getting the SGBs in a good timeframe, while also not overwhelming my body. It is a delicate balance that is difficult to determine.
The other issue is that the SGB doctor forgot to mention that he was going to be out of town for Spring Break next week before administering the first SGB, so if I don’t get the 2nd SGB this Friday, there will be 3 weeks between SGB procedures. And, for most people, that is not ideal. It would have been nice to know his vacation plans prior to getting the first SGB procedure. [Side Note: I only found out about his vacation schedule because I called last Friday to schedule my recurring SGB appointments. I was told then that he was going to be out of town for 2 weeks for Spring Break. However, the office updated his schedule yesterday to only being out of town for 1 week: next week. I have scheduled the 3rd SBG for the following week (after his 1 week vacation?), so I guess we will find out. The entire office seems very disorganized.]
At this point, I am not really sure what will happen this week, next week, or the following week.
Emotional Health:
Good thing I have increased my tolerance for uncertainty over the last 20+ years. I am doing my best to keep my vision consistent and my plan flexible.
I am also doing my best to remember that this is complicated, and there are a lot of unknowns. I can only make the best decisions I can with the information available to me at the time. And, I can learn something from each adjustment along the way.
I also know that reroutes can be blessings, too.
Sometimes, we don’t understand how much of a blessing reroutes are until later, and I have been through enough on this journey to know that for sure. ❤️
I told my husband this morning that I am glad I have worked to become more comfortable with uncertainty, because that work is benefitting me in a big way right now. I also apologized to him for our appointments and schedules changing by the minute. He replied, “Exactly what you said. I am used to it, so it doesn’t faze me like it would have previously.”
Look at us being flexible and staying grounded. I am grateful that both of us have taken advantage of opportunities to become more resilient throughout our lives.
Brutal. So many unknowns and reroutes and so much uncertainty. EVERY. SINGLE. DAY.
Beautiful. Keeping the vision consistent and the plan flexible. Being resilient in the face of so many unknowns and reroutes and so much uncertainty.
Just another day of . . . This Brutiful Life: The Brutal & Beautiful Moments of My Life.
This Brutiful Life 